Webinar for SETBP1 Data Collection Program with RARE-X tomorrow

Webinar for SETBP1 Data Collection Program with RARE-X tomorrow

Join us tomorrow for our RARE-X SETBP1 Data Collection Program launch!

Saturday 5 March at 1pm ET / 10am PT
Jointly hosted by SETBP1 Society and RARE-X

We look forward to sharing this exciting new step in our efforts to elevate the patient’s voice!!