When Nicole learned of Colton’s diagnosis in February 2016, there was both relief and despair. Knowing that Whole Exome Sequencing may not yield any results, it was a surprise when she discovered her sweet son’s condition… SETBP1 disorder. Since those days, Nicole began researching everything she could about this disorder and was so excited to discover SETBP1 Society. Since joining SETBP1 Society, Nicole has been an active member of the community and a major supporter for treatment research for SETBP1 disorder.

Nicole was honored to be asked to be the SETBP1 Treasurer in the Fall of 2020. Nicole and her husband own multiple businesses, both for-profit and non-profit ventures. Nicole feels that she can really aid the SETBP1 Society with her business acumen. Nicole has a bachelor’s in business administration, and a Master of Education in Athletic Administration. Nicole has been a successful collegiate volleyball coach for over 20 years, having coached at Lehigh University, Temple University, Franklin & Marshall College, Keystone College, and the State University of New York at Cortland. Her teams have competed for a championship in every position she has held, and she has coached three All-Americans and several All Region volleyball student-athletes.

When Nicole is not coaching or working, she enjoys reading fiction novels, and playing with her kids. Nicole is married to Jeremy Wentz, VMD and they share 4 children: Jackson (15), Brielle (12), Colton (9) and his twin sister Caleena. Nicole resides in Clarks Summit, PA with her family and their dog, Chewy, and bunny, Smores!