Janaye lives in Louisville, KY with her husband and six children. In April 2020 one of her twin daughters, at 2.5 years old, was diagnosed with SETBP1 disorder. The journey to diagnosis (though relatively short) was long and hard- faught for. Today, her family are grateful to have some answers and even more thankful for a community to stand with. When she isn’t driving to or from therapy, she can be found homeschooling her children. She enjoys cooking for family and friends, relaxing outdoors, and exploring new places with her family when she can. You can find her on Facebook and Instagram sharing SETBP1 facts and related info with the world. She hopes to use these platforms to raise awareness and cultivate community for the diagnosed and their families.