Eric’s work and travel led him down a path to serve the community and a career in the non-profit space, particularly in web development and online fundraising. Along with his wife, he traveled across countries and oceans in search for what was most meaningful in this world, only to find that its beauty was embodied within a tiny being of spirit and passion. The greatest adventure life had in store was with his son, who would later be diagnosed with SETBP1 disorder. Recognizing that there was no organization focused on this ultra rare disorder, and that there was no significant research in this area, Eric and his wife decided they should take the lead and start SETBP1 Society to bring families together, collect and build resources for the newly diagnosed, and to push research for SETBP1 disorder forward.

Eric attended the University of Texas and Oklahoma State University, earning his degree in Computer Science. He draws on his experience in the non-profit space, serving such organizations as the Alzheimer’s Association, American Cancer Society, and National MS Society while managing a Professional Services team at Blackbaud (formerly Convio), and now working on digital fundraising for the Alzheimer’s Association. Eric utilizes his experience in full stack web development and online fundraising to support the SETBP1 Society in reaching its goals.