Alice McConnell
Alice’s professional interests have always been driven by her deep desire to improve communities and solve problems. She has years of experience administering both private and government contracts, designing, planning, coordinating, scheduling, estimating, and managing large complex multi-year engineering projects. She holds a Professional Engineer’s License in Civil Engineering. In 2009 Alice’s daughter, Evie, was born. Not long after in 2011 her son Jack came along. Shortly after Jack was born, Evie was diagnosed with Succinic Semialdehyde Dehydrogenase deficiency (SSADHD). Jack was tested and he was also diagnosed with SSADHD. Their diagnosis led Alice to put her PE license on inactive status and submerge herself into the world of rare disorders.
She quickly understood after hitting a wall with traditional biopharma companies that due to the small diagnosed population size that a different model was needed to commercialize a treatment for ultra-orphan disorders. This awakened her to the complexity of developing a treatment for an ultra-orphan disorder which led to the formation of Speragen.
Alice co-founded a company dedicated to commercializing treatments for rare disorders. They focus on research, securing intellectual property, engaging the FDA, supporting clinical trial enrollment and progression, aiding diagnosis and involving their patient population.