SETBP1 Genetics: Bite-Sized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our 4th βSETBP1 Genetics: Bite-sized Breakthroughβ. This time, we are looking at a breakthrough article published in Clinical Genetics in 2024 by Haley O Oyler from SETBP1 Society and an esteemed team of medical and professional […]
π πΊππ£πππππ’ππ πππ¦, the global celebration of generosity and giving, is THIS TUESDAY, December 3rd! This inspiring movement highlights the causes that uplift our families, friends, and loved ones. π How will YOU Give Hope and Lend a Hand this πΊππ£πππππ’ππ πππ¦? Here are some ways you can help: 1οΈβ£ Start a Fundraiser – Create a SETBP1 […]
The Jackson Laboratory Creates Two Models for SETBP1 Research Mice share more than 95% of our human DNA, meaning we are affected very similarly by disease. For over 90 years, The Jackson Laboratory has utilized this understanding to refine personalized medicine throughout the world and across a spectrum of diseases, now including SETBP1 disorder. Austin, […]
Non-profit for SETBP1 Disorder Exceeds Fundraising Goal during COVID-19 Families from across the globe who have been diagnosed with a very rare neurodevelopmental disorder, SETBP1 disorder, increase total funds raised by 25% for UPennβs Million Dollar Bike Ride. Austin, TXβ October 5, 2020 β In June, non-profit organizations from around the country expected to take […]
