Speech Tracker – NEW SETBP1 Speech and Language Study JUST LAUNCHED!
With the overwhelming SETBP1 community participation and completion of the first SETBP1 Speech and Language Study, resulting in a publication and soon-to-be-released SETBP1 Resource Guide, a new SETBP1 Speech and Language Study has kicked off. This study titled the Speech Tracker will monitor speech and language patterns from individuals with SETBP1 haploinsufficiency disorder over a 3 year period and build off the knowledge gained from the first study.
If you or your child have a SETBP1 difference, please consider signing up for the Murdoch Children’s Research Institute’s SETBP1 community international study. The project aims to improve overall understanding of speech and language abilities in individuals with SETBP1 haploinsufficiency disorder in order to to improve prognoses, better identify individuals in need of speech therapy and to develop more targeted speech therapies. This study is open to families that speak English, German, French, Dutch, Italian, Spanish or Portuguese.
To express interest in participating in the study, email Dr Angela Morgan at angela.morgan@mcri.edu.au or geneticsofspeech@mcri.edu.au.