SETBP1Strong Team
Our SETBP1 community is participating in the Million Dollar Bike Ride sponsored by the University of Pennsylvania Orphan Disease Center. Our SETBP1 Strong Team has kicked off our fundraising efforts.
Our goal is to raise $50,000 for SETBP1 disorder research. We need to raise a minimum of $20,000 for a research grant. All funds raised between $20,000 and $30,000 will be doubled by the Orphan Disease Center, which is AMAZING!! If we reach our goal of $50,000, then we will have $80,000 (with matching funds included) to dedicate to SETBP1-HD and related disorder research!
Our Progress
Our SETBP1Strong Team Fundraising Page
Check out our SETBP1Strong Team Fundraising Page HERE!