Please register for each of the virtual meeting sessions that you would like to attend by clicking the hyperlinks below.
All presentations will include time for a live Q&A and will be recorded.

General Session 1, August 7: https://bit.ly/3j9iYls
SETBP1 Meeting, August 9: https://bit.ly/2Wl9I47
General Session 2, August 14: https://bit.ly/3fCqrr1

SETBP1 Families
VIRTUAL CONFERENCE AGENDA
Simons Searchlight Family and Research Conference

General Session 1
Friday, August 7
2:00 PM – 4:00 PM Eastern Time
Register for this session: https://bit.ly/3j9iYls

• Introduction by Wendy Chung, MD, PhD
• Challenging Behaviors by Karen Bearss, PhD
• Genetics 101 & How to read your lab report by Julian Savatt, MS, LGC & Rebecca Sheedy, LGC

SETBP1 Meeting
Sunday, August 9
4:00 PM – 6:00 PM Eastern Time
Register for this session: https://bit.ly/2Wl9I47

• Simons Searchlight SETBP1 Registry Results by Jennifer Bain, MD, PhD
• Navigating the Challenges of ADHD in SETBP1 Disorder by Siddharth (Sid) Srivastava, MD
• SETBP1 Society Update by Haley Oyler

6:00 PM – 7:00 PM Eastern Time
SETBP1 Family Chat – Families will stay on the line after the SETBP1 Meeting ends to connect and share. This portion will not be recorded.

General Session 2
Friday, August 14th
2:00 PM – 4:00 PM Eastern Time
Register for this session: https://bit.ly/3fCqrr1

• Introduction by John Spiro, PhD
• What is Simons Searchlight by Misia Kowanda, MSc, CGC & LeeAnne Green Snyder, PhD/
• Introduction to SFARI Science by John Spiro, PhD
• iPSCs by Julia Sommer, PhD
• Animal Models by Alice Luo Clayton, PhD& Britter Gundersen, PhD
• Gene Therapies by Wendy Chung, MD, PhD
• Clinical Trials by Paul Wang, PhD

View the Flyer