SETBP1 Society is pleased to announce the availability of several new resources.

SETBP1 Disorder Information Sheet

SETBP1 Society is proud to announce the release of our SETBP1 disorder Information Sheet. This is a helpful resource for medical professionals, therapists, education providers, newly diagnosed families, and anyone who wants to familiarize themselves with SETBP1 disorder. Check out our Information Sheet! Read it!

SETBP1 Disorder guide

NORD, National Organization for Rare Disorders, with approval from Dr Bregje van Bon, a clinical geneticist in Nijmegen, Netherlands at Radboud Medical Center, and collaboration with SETBP1 Society produced this valuable resource for our community. Read It!

2019 SETBP1 Virtual Family Conference

Our 2019 Virtual Family Conference in January hosted by Simons VIP Connect was engaging and educational for all attendees. The full presentation is viewable HERE!
Watch the Childhood Apraxia of Speech and Other Communication Disorders in SETBP1 presentation by Nancy Kaufman HERE!
Check out other SETBP1 resources HERE!