Register for the SETBP1 Family Conference by July 12th to receive your free gift box! This year’s conference is full of helpful information, scientific updates, and practical tools to take home with you! Check out the Agenda for the SETBP1 Family Meeting and the Agenda for the 2 additional General Session days.

SETBP1 Family Meeting: Sunday, August 8 2:00-5:00pm Eastern Standard Time / 7:00-10:00pm UK time
Register HERE: http://bit.ly/GeneticCommunityRegistration

AGENDA:
2:00pm Eastern Time – SETBP1 Society Update – Haley Oyler
2:20pm Eastern Time – “How Do I Know if My Child Has Sensory Processing Issues?” & Discussion – Erin Flynn, MS, OTR/L, The SPIRAL Foundation
3:00pm Eastern Time – “Stem Cell Models of SETBP1 Haploinsufficiency Disorder” & Discussion – Carl Ernst, PhD, McGill University
3:40pm Eastern Time – Simons Searchlight Update on SETBP1 & Discussion – Wendy Chung, MD, PhD, Director of Clinical Research, SFARI, Simons Foundation
4:05pm Eastern Time SETBP1 Families Private Breakout

The sessions will be available in languages other than English during the conference!!

General Sessions: Friday, July 30 1:00pm-4:00pm Eastern Standard Time & Friday, August 6 1:00pm-4:00pm Eastern Standard Time
Register HERE: http://bit.ly/GeneralSessionRegistration

General Session Day 1: SCIENCE & MEDICAL
Friday, July 30 1:00pm-4:00pm Eastern Standard Time / 6:00pm-9:00pm UK time
1:00 PM Welcome / Opening Remarks by Dr. Wendy Chung
1:10 PM Genetic Therapies for the Neurodevelopmental Community & Discussion
2:15 PM 15-minute BREAK
2:30 PM Preparing for Clinical Trials in Neurodevelopmental Disorders & Discussion
3:20 PM Recognizing Anxiety Behaviors and Calming Strategies

Friday, August 6 1:00pm-4:00pm Eastern Standard Time / 6:00pm-9:00pm UK time
General Session Day 2: SERVICES & THERAPIES
1:00 PM
Room 1: Diagnosis and Treatment of Motor Speech Disorders & Discussion
Room 2: Augmentative and Alternative Communication (AAC) Methods & Discussion
2:05 PM 10-minute BREAK
2:15 PM
Room 1: Understanding Problem Behaviors in Neurodevelopmental Disorders & Discussion – Rajneesh Mahajan, MD
Room 2: Developing Social and Pragmatic Skills in School Age Children – Cora M Taylor, PhD
3:00 PM
Speed Sharing: Parent-Led Interactive Brainstorm about What’s Working for Managing Behaviors – Patient Advocacy Group Leaders & Simons Searchlight

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Please note that there are 2 registration links. One is for the SETBP1 Family Meeting and the other is for the 2 General Session days.