RARE-X Launch Party for the SETBP1 community
WHEN: Wednesday, October 26th 7PM CDT / 8PM EDT
DETAILS: Party with your SETBP1 community while supporting SETBP1 research at SETBP1 Society’s RARE-X Launch Party! Grab a seat, a beverage and a snack and we’ll all register together and a RARE-X representative will be present to answer questions.
Joining the SETBP1 Data Collection Program hosted by RARE-X is one way we can help accelerate that path toward better treatments for SETBP1-HD and related disorders.
For SETBP1 parents and caregivers only!