Our SETBP1Strong Team rode again in the University of Pennsylvania Orphan Disease Center Million Dollar Bike Ride on Saturday, June 13, 2020! This fundraising event was an unbelievable success! Due to the current pandemic, our 17 SETBP1Strong cyclists joined around 700 other virtual cyclists from around the world and from 39 other rare disease groups to raise funds for rare disease research. Our SETBP1Strong team with the Orphan Disease Center’s $1 for $1 matching up to $30,000, raised $73,000 for a SETBP1 disorder research grant!

Our SETBP1 Strong team with support from UPenn ODC raised $67,943 for SETBP1 disorder research in 2019!! View more details about the UPenn ODC Million Dollar Bike Ride SETBP1 disorder grant recipient.

Want to learn more? Check out our Million Dollar Bike Ride Team Page!