Million Dollar Bike Ride – Join our SETBP1 Strong Team
SETBP1 Society and the University of Pennsylvania Orphan Disease Center invite you to participate in the Million Dollar Bike Ride on Saturday, June 8, 2019 to raise money for research in rare diseases, including SETBP1 disorder. 100% of registration and fundraising money will go towards SETBP1 research! Not only that, but the Orphan Disease Center will match up to $30,000 that is raised on behalf of our SETBP1 Strong team! Learn more by visiting our Million Dollar Bike Ride page.
We will also hold a family meetup around this event for all those SETBP1 families that plan to attend. More details to come soon!
UPDATE: Our community has raised over $36,500 and with the UPenn ODC matching, we have over $66,500 for SETBP1 disorder research! Don’t worry if you have not had a chance to donate, you have until the end of June. You can donate to our SETBP1 Strong Team fundraiser page.
View our SETBP1 Strong Team page!