Million Dollar Bike Ride – Join our SETBP1Strong Team
SETBP1 Society and the University of Pennsylvania Orphan Disease Center invite you to participate in the Million Dollar Bike Ride on Saturday, June 12, 2021 to raise money for research in rare diseases, including SETBP1 disorder. 100% of registration and fundraising money will go towards SETBP1 research! Not only that, but the Orphan Disease Center will match up to $30,000 that is raised on behalf of our SETBP1 Strong team! Learn more by visiting our Million Dollar Bike Ride page.
This year, due to COVID-19, we will be participating as virtual riders and ride, walk or move in whatever way we prefer in our own hometown. Please share photos, videos, or livestreams of your bike ride to help raise awareness and promote our community (use #SETBP1Strong). Also, please follow CDC guidelines when planning your virtual bike ride.
Our SETBP1 Strong team with support from UPenn ODC raised $80,746 for SETBP1 disorder research in 2020!! View more details about the UPenn ODC Million Dollar Bike Ride SETBP1 disorder grant recipient from the past 2 years.
Want to learn more? Check out our Million Dollar Bike Ride Team Page!
View our SETBP1 Strong Team page!