Million Dollar Bike Ride – Join our SETBP1 Strong Team
SETBP1 Society and the University of Pennsylvania Orphan Disease Center invite you to participate in the Million Dollar Bike Ride on Saturday, June 13, 2020 to raise money for research in rare diseases, including SETBP1 disorder. 100% of registration and fundraising money will go towards SETBP1 research! Not only that, but the Orphan Disease Center will match up to $30,000 that is raised on behalf of our SETBP1 Strong team! Learn more by visiting our Million Dollar Bike Ride page.
This year, due to the COVID-19 coronavirus epidemic, we will be participating as virtual riders and ride our bikes in your own hometown. Please share photos, videos, or livestreams of your bike ride to help raise awareness and promote our community (use #SETBP1Strong). Also, please follow CDC guidelines when planning your virtual bike ride.
Our SETBP1 Strong team with support from UPenn ODC raised $67,943 for SETBP1 disorder research in 2019!! View more details about the UPenn ODC Million Dollar Bike Ride SETBP1 disorder grant recipient.
Want to learn more? Check out our Million Dollar Bike Ride Team Page!
View our SETBP1 Strong Team page!