Giving Tuesday Facebook Fundraising

Giving Tuesday Facebook Fundraisers

Steps to create a Giving Tuesday fundraiser on Facebook:

  • Go to https://www.facebook.com/pg/SETBP1/fundraisers/
  • Click the “+ Raise Money” button on the right side of the page
  • Confirm that SETBP1 Society is selected as the beneficiary
  • Enter how much you would like to raise and the end date for the fundraiser, then click Next
  • Give your fundraiser a title (example: Trina’s #GivingTuesday Fundraiser for SETBP1 Society)
  • Enter a story about why you support our organization, about Donating on Giving Tuesday and/or about your connection to SETBP1 disorder (Sample content provided below)
  • Select a Cover Photo from our Giving Tuesday selection

  • Create and publish your Facebook Fundraiser!
  • ***IMPORTANT*** After you create the fundraiser, for these fundraisers to work, you have to INVITE your entire friend list one by one. It’s tedious, but it’s really the only way people will see it due to Facebook algorithms

Social Media & Communication Information and Examples:

Social Media Hashtags:
#GivingTuesday #SETBP1 #LevelUp

Add a Facebook Profile Photo Frame:
Go to your Profile page -> Hover over your profile photo -> Select Update -> Click Add Frame -> Search for SETBP1 -> Select your preferred option – > Click the Use As Profile Picture button and the duration for the frame to remain on the photo

Facebook/Instagram Example Content:
This Giving Tuesday help me reach my goal of $[insert your personal fundraising goal amount] to support SETBP1 disorder research! My child has SETBP1 disorder and SETBP1 Society is the only organization dedicated to helping all individuals with SETBP1 disorder and to promoting research that will lead to a targeted treatment to improve the quality of life for my child. [Insert your SETBP1 Society Facebook Fundraiser link OR use https://www.paypal.me/setbp1] #GivingTuesday #SETBP1 #LevelUp

Twitter Example Content:

Sample Giving Tuesday Facebook Fundraiser Content:

Our child, CHILD’S NAME, was diagnosed with SETBP1 disorder. SETBP1 disorder is a rare neurodevelopmental disorder and causes a spectrum of symptoms including absent speech to expressive language delays, mild to severe intellectual disability, autistic-traits or autism, developmental delays, fine and gross motor delays, seizures and ADHD. Less than 20 cases worldwide have been published about SETBP1 disorder and less than 90 known individuals have the disorder. We need targeted research to help us better understand this ultra rare disorder. Help us take our SETBP1 mouse model to the next level. We need to dive deeper into understanding the SETBP1 disorder mouse model and what impact loss of SETBP1 protein has on the mouse. We also plan to take the mouse to the next level by understanding what happens when SETBP1 protein is restored at various stages of the mouse’s life. This research will help us learn why our kids struggle so hard with everyday life and to find potential treatments to help our kids have a better quality of life.

On December 3rd Giving Tuesday starting at 7:00am CST/8:00am EST, Facebook is matching up to $7 million donated to Facebook fundraisers, including up to $20,000 per donor and $100,000 per nonprofit. 100% of the donations made through Facebook Payments go to the charity. Generous SETBP1 supporters are also matching $1 for $1 up to $5,000 in donations starting on Giving Tuesday.

Consider making a difference in our SETBP1 community by donating to SETBP1 Society. You can also help spread awareness by sharing this fundraiser.

Together we are #SETBP1Strong!

Sample Giving Tuesday Email Content:


SUBJECT : Support a Cause I Care About – SETBP1 disorder
CONTENT : I am reaching out to you today to ask you to consider supporting a cause that is dear to my heart. Imagine wanting to express yourself but not being able to speak or write the words you want to say because your brain jumbles up the messages. This is the reality for individuals with SETBP1 disorder. For reasons unknown, a mutation occurred within one copy of their SETBP1 gene before birth and now their brain works differently. We do not know why this small SETBP1 difference is so life-changing. All individuals with SETBP1 disorder have speech/language issues ranging from a motor-planning speech disorder called childhood apraxia of speech to the inability to form words. Most have cognitive delays and many have autistic traits or autism. ADHD is common and some individuals within the SETBP1 community have seizures.

On Giving Tuesday December 3rd starting at 7:00am CST/8:00am EST, Facebook will match up to $7 million donated to Facebook fundraisers, including up to $20,000 per donor and $100,000 per nonprofit. 100% of the donations made through Facebook Payments go to the charity. We also have a generous SETBP1 community family matching $ for $ up to $(AMOUNT COMING SOON).

Consider making a difference in our SETBP1 community by donating to SETBP1 Society. Donations made to SETBP1 Society help fund research dedicated to finding targeted treatments to help individuals with this disorder. For Giving Tuesday, SETBP1 Society is raising funds to level up our SETBP1 mouse model to expand our understanding of the life-impacting disorder. You can also help spread awareness by sharing this email.

Stand SETBP1 Strong with us! Consider donating even $10 to SETBP1 Society, every $ counts. You can donate on their main SETBP1 Society Facebook page at http://facebook.com/SETBP1 or my personal fundraiser for SETBP1 Society at YOUR_FUNDRAISER_LINK or via paypal at https://www.paypal.me/setbp1.

Together we are SETBP1 Strong! Be the Hope! Be the Change!