Get Involved
There are many different ways to get involved with SETBP1 Society. Your effort and support is greatly appreciated by all SETBP1 families around the world. The following links are few examples of ways to help and support those impacted by SETBP1-HD.
DONATE
Your gift gives so much more than money – it gives all of our families hope. SETBP1 Society is a 501(c)(3) organization and a charitable donation is tax-deductible.
FUNDRAISE
There are so many ways to help fundraise for SETBP1 research. Your effort and support is greatly appreciated by all SETBP1 families around the world!
Events
Participate in one of our events, whether it’s a fundraising event, educational webinar, or another event hosted by SETBP1 Society.
RESEARCH
There are many ways to get involved now in research and to help create a better understanding of SETBP1-HD.