SETBP1 Disorder Grants Under Review!!

The University of Pennsylvania Orphan Disease Center accepted grants for a one-year grant for $67,943 for SETBP1 Disorder research through their Million Dollar Bike Ride Pilot Grant program! The one-page LOI was due no later than MONDAY, SEPTEMBER 23, 2019 by 8pm (EST) and the grant proposals were due no later than THURSDAY, OCTOBER 24, […]

SETBP1 Disorder Grant Now Available!!

The University of Pennsylvania Orphan Disease Center is now accepting letters of interest for a one-year grant for $67,943 for SETBP1 Disorder research through their Million Dollar Bike Ride Pilot Grant program! The one-page LOI is due no later than MONDAY, SEPTEMBER 23, 2019 by 8pm (EST). SETBP1 Disorder Grant Details: One $67,943 grant will […]

Speech and Language SETBP1 Study!

A new SETBP1 disorder study just launched!! If you or your child have a SETBP1 difference, please consider signing up for the Murdoch Children’s Research Institute’s research project into speech and language skills in individuals with SETBP1 variants: an international study. The project aims to improve overall understanding of speech and language abilities in individuals […]