Bite-Sized Breakthroughs - December 18, 2024

SETBP1 Genetics: Bite-Sized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our…

SETBP1 Community Survey - 2024

SETBP1 Society provided a survey to the SETBP1 Community for parents and caregivers to complete starting in April earlier this…

Faces of SETBP1

SETBP1 Society supports over 220 families impacted by SETBP1 haploinsufficiency disorder (SETBP1-HD) and related disorders. We have a private Facebook…

SCoReS - New Study Launch & Results from Previous Studies

New SETBP1 Behaviors and Characteristics Study & Prior SCoReS Study Results New SETBP1 Behaviors and Characteristics Study Learn about a…

Bite-Sized Breakthroughs – December 18, 2024

SETBP1 Genetics: Bite-Sized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our 4th “SETBP1 Genetics: Bite-sized Breakthrough”. This time, we are looking…

Early Bird Registration Open till August 20th

The SETBP1 Family & Research Conference is THIS OCTOBER from Friday early evening on the 11th through Sunday lunch on the 13th in Austin, TX! Our Empowering Independence-themed conference provides…

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