2024 SETBP1 Community Survey
Our 2024 SETBP1 Community Survey is available for SETBP1 families to complete in English, Dutch, French, German, Italian, Portuguese, and Spanish. We want to hear from you! Please take about 15 minutes to complete this short survey There is an additional section included for SETBP1 parents and caregivers of young adults as we have very […]