Month: February 2024

Bite-Sized Breakthroughs – February 28, 2024

Bite-Sized Breakthroughs – February 28, 2024

by haley / On Posted in Featured, Research

SETBP1 Genetics: Bite-Sized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our first “SETBP1 Genetics: Bite-sized Breakthrough”, featuring a review article published by Dr. Angela Morgan at Murdoch Children’s Research Institute (MCRI) in Melbourne, VIC, Australia! The article is titled “Genetic architecture of childhood speech disorder: a […]

2024 SETBP1Strong Million Dollar Bike Ride

2024 SETBP1Strong Million Dollar Bike Ride

by haley / On Posted in Events

Join the SETBP1Strong Team in the 2024 Million Dollar Bike Ride! Registration is now OPEN! SETBP1 Society in partnership with Schinzel-Gideon Syndrome Foundation and the University of Pennsylvania Orphan Disease Center (UPenn ODC) invite you to participate in the Million Dollar Bike Ride. This annual giving festival brings together rare disease families, friends and supporters […]