SETBP1 Society in partnership with Schinzel-Gideon Syndrome Foundation and the University of Pennsylvania Orphan Disease Center (UPenn ODC) invite you to participate in the Million Dollar Bike Ride. This annual giving festival brings together rare disease families, friends and supporters to cycle to raise funds for rare disease research and to spread awareness of rare disease. This year’s event will be an in-person event with the option to fundraise and ride virtually. The cycling event will take place in Philadelphia, PA on Saturday, June 8th.

Our SETBP1Strong Team has participated for the past 5 years!

EVENT DETAILS
WHEN: Saturday, June 8th, 2024
WHERE: Philadelphia, PA, USA
You can ride in-person or virtually so you can show your support and ride anywhere you choose.
NOTE: 100% of registration and fundraising money will go towards SETBP1 research!

Want more information? Check out the details at our MDBR page at SETBP1 Society or check out the UPenn ODC MDBR page at UPenn ODC!