Give Now & Make an Impact Join our GT25 campaign to help us reach our $25K goal this year! We aim to raise $25,000 on GivingTuesday (Tuesday, November 28th) for our onsite-research, research collaborations and gathering at our 2024 SETBP1 Family & Research Conference! How do we get to the 25K? By creating 25 Facebook […]
New SETBP1 Behaviors and Characteristics Study & Prior SCoReS Study Results New SETBP1 Behaviors and Characteristics Study Learn about a new SETBP1 research study! This study will focus on learning more about the unique characteristics and behaviors of our children and young adults with SETBP1 haploinsufficiency disorder and related disorders. The webinar provides information about […]
