Month: October 2022

SETBP1 Society Joins RARE-X to Increase Visibility in Research Community

SETBP1 Society Joins RARE-X to Increase Visibility in Research Community

by haley / On Posted in Press Release

SETBP1 Society Joins RARE-X to Increase Visibility in Research Community Austin, TX — October 25, 2022 – In partnership with RARE-X, SETBP1 Society is expanding its efforts in natural history studies to expedite research by creating a readily available pool of data on SETBP1 haploinsufficiency disorder (SETBP1-HD) and SETBP1-related disorder. Ownership of this natural history […]

RARE-X Launch Party for the SETBP1 community

RARE-X Launch Party for the SETBP1 community

by haley / On Posted in Events

WHEN: Wednesday, October 26th 7PM CDT / 8PM EDT DETAILS: Party with your SETBP1 community while supporting SETBP1 research at SETBP1 Society’s RARE-X Launch Party! Grab a seat, a beverage and a snack and we’ll all register together and a RARE-X representative will be present to answer questions. Joining the SETBP1 Data Collection Program hosted […]