2021 SETBP1 Family Conference Videos

Virtual SETBP1 Family Conference Videos (2021) hosted in partnership with Simons Searchlight

*Note: If your preferred language is not English, please turn on Closed Captioning on the youtube videos and select your preferred language. The content will appear in your preferred language as subtitles.

SETBP1 TOPICS

SETBP1 Society Update by Haley Oyler

How Do I Know if My Child Has Sensory Processing Issues & Discussion by Erin Flynn

Stem Cell Models of SETBP1 Haploinsufficiency Disorder & Discussion by Carl Ernst

Simons Searchlight Update on SETBP1 & Discussion by Wendy Chung

SERVICES & THERAPIES

Diagnosis and Treatment of Motor Speech Disorders & Discussion

Augmentative and Alternative Communication (AAC) Methods & Discussion

Speed Sharing: Parent-Led Interactive Brainstorm about What’s Working for Managing Behaviors

GENETICS & CLINICAL TRIALS

Genetic Therapies for the Neurodevelopmental Community & Discussion

Preparing for Clinical Trials in Neurodevelopmental Disorders & Discussion

PARENT RECOMMENDED RESOURCES

Parent-Led Interactive Brainstorming Tips