Month: February 2021

PRESS RELEASE – GIVING TUESDAY DONATIONS TO SUPPORT SETBP1 RESEARCH AT BAYLOR COLLEGE OF MEDICINE AND TEXAS CHILDREN’S HOSPITAL

PRESS RELEASE – GIVING TUESDAY DONATIONS TO SUPPORT SETBP1 RESEARCH AT BAYLOR COLLEGE OF MEDICINE AND TEXAS CHILDREN’S HOSPITAL

by haley / On Posted in Press Release

Giving Tuesday Donations to support SETBP1 Research at Baylor College of Medicine and Texas Children’s Hospital SETBP1 disorder is a rare genetic, neurodevelopmental disorder caused by a mutation or microdeletion within the SETBP1 gene. There are no treatments or standard of care for individuals with SETBP1 disorder. Austin, TX – February 26, 2021 – On […]

SETBP1 Community Research Study (SCoReS)

by haley / On Posted in Research

SETBP1 Community Research Study (SCoReS) A new SETBP1 disorder collaborative study just launched!! If you or your child have SETBP1 disorder, please consider signing up for the SCoReS research project. The Department of Psychological Sciences at Tarleton State University (TSU) has received approval to research the parenting experiences within the SETBP1 Community. This project is […]