Q4 Quarterly SETBP1 Collaboration Call Thursday, December 10th at 11:00 am CST/12:00 pm ET/5:00 pm GMT The purpose of the quarterly SETBP1 calls is to enable researchers, specialists, scientists, and industry from around the world to share their research, their expertise, and collaborate with each other. The goal is to move research forward faster through […]
Give Now & Make an Impact [ultimeter id=’3052′] Join our GT25 campaign to help us reach over $100K this year! We aim to raise $25,000 on Giving Tuesday for targeted SETBP1 disorder research, create 25 Facebook Fundraisers linked to SETBP1 Society, match $25 for every Facebook Fundraiser linked to SETBP1 Society and match an additional […]
The Jackson Laboratory Creates Two Models for SETBP1 Research Mice share more than 95% of our human DNA, meaning we are affected very similarly by disease. For over 90 years, The Jackson Laboratory has utilized this understanding to refine personalized medicine throughout the world and across a spectrum of diseases, now including SETBP1 disorder. Austin, […]
SETBP1 Family Presentation Saturday, November 7th at 1:30pm CST/2:30 pm ET/7:30 pm GMT This presentation is open to all SETBP1 families. A Q&A session will follow the presentation. Presentation title: Speech and Language Abilities in Children with SETBP1 Disorder Presenter: Angela Morgan, PhD Speech and Language group at the Murdoch Children’s Research Institute For families […]
