Registration Is Now Open for the 2026 SETBP1 Family & Research Conference!

We are thrilled to announce that registration is officially open for the 2026 SETBP1 Family & Research Conference, taking place…

New Parent Speech & Communication Survey Results Report Now Available

The SETBP1 Society is excited to share the launch of our new Parent Speech & Communication Survey Results Report, created…

2025 SETBP1 Community Survey Results Now Available

2025 SETBP1 Community Survey Results Now Available We’re excited to share the results of our 2025 SETBP1 Community Survey! 💙…

SETBP1-HD/SETBP1-RD Education Guide

My name is Sophie, and I’m a clinical-community psychology Ph.D. student at the University of South Carolina in the Brain…

Faces of SETBP1

SETBP1 Society supports over 220 families impacted by SETBP1 haploinsufficiency disorder (SETBP1-HD) and related disorders. We have a private Facebook…

© SETBP1 Society - P.O. Box 301584 Austin, TX 78703 - 512-522-8072 - SETBP1 Society is a not-for-profit 501(c)(3) organization. Our federal tax ID number is 82-0891558.
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