Looking back – SETBP1 Society & SETBP1-HD Timeline
As we spring into 2025 excited for the research and discoveries to come, we look back into the history of SETBP1 Society and SETBP1 haploinsufficiency disorder. From 2011 to today,…
New SETBP1 Behaviors and Characteristics Study & Prior SCoReS Study Results New SETBP1 Behaviors and Characteristics Study Learn about a…
Read MoreFirst ever international SETBP1 conference brings together families, researchers, and supporting organizations 2/26/25, Kelsey Bennett In October 2024, nearly 100…
Read MoreSETBP1 Genetics: Bite-Sized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our…
Read MoreAs we spring into 2025 excited for the research and discoveries to come, we look back into the history of…
Read MoreSETBP1 Society provided a survey to the SETBP1 Community for parents and caregivers to complete starting in April earlier this…
Read MoreSETBP1 Society supports over 220 families impacted by SETBP1 haploinsufficiency disorder (SETBP1-HD) and related disorders. We have a private Facebook…
Read MoreNew SETBP1 Behaviors and Characteristics Study & Prior SCoReS Study Results New SETBP1 Behaviors and Characteristics Study Learn about a…
Read MoreFirst ever international SETBP1 conference brings together families, researchers, and supporting organizations 2/26/25, Kelsey Bennett In October 2024, nearly 100…
Read MoreAs we spring into 2025 excited for the research and discoveries to come, we look back into the history of SETBP1 Society and SETBP1 haploinsufficiency disorder. From 2011 to today,…
SETBP1 Genetics: Bite-Sized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our 4th “SETBP1 Genetics: Bite-sized Breakthrough”. This time, we are looking…
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